Vallillee tries to temper his anger about a situation in which a drug company seeks profits before saving lives. He remains determined to watch his six year old son grow up.
CF is a chronic, progressive and ultimately fatal disease that affects every aspect of a sufferer's life. The daily routine for over 3,000 sufferers in Canada includes 60 to 70 pills, an inhaler that pumps antibiotics and medication into the lungs as well as several hours of physiotherapy. Regular injections and other hospital visits are also required.
The debate over the cystic fibrosis drug that could potentially help certain sufferers live longer would be fascinating to follow, even if we did not have a fighter in our coverage area. Kalydeco was approved by Health Canada in 2012, but the treatment comes at a hefty cost at $306,000 a year.
CF drug could save lives
available to the 400 people who require it in the United Kingdom.
Tim Vallillee has long been raising awareness and funds to battle the disease he's lived with for over four decades. He believes taking Kalydeco would grant him a healthier, longer life.
Nine Canadian provinces, with the exception of Quebec, have been attempting to negotiate a lower price, but after more than 12 months the drug maker Vertex has not been willing to make a deal.
Vallillee knows the cost of Kalydeco is enormous, but at the same time, he is frustrated he can't take it given the health care realities he lives Adidas Prophere Limited
"As much as that is my desire, technically we do need to find out if there is going to be a pan Canadian resolve to this," he told the CBC.
At 45, Vallillee knows the statistical chances for his own longevity and they aren't good. He dreams of the way his life might change if he could take Kalydeco. For over a year, he has needed to use an oxygen tank while sleeping. A single bout of pneumonia has threatened his life before.
CF leads to a buildup of thick mucus in the lungs, resulting in severe respiratory issues. It also affects the digestive system. In this country, the median life expectancy for CF is 48, which is believed to be the world's highest.
Kalydeco is being provided to nearly all of the 1,200 Americans who need it either through private Nike Air Vapormax Flyknit Orange insurance or government programs. The drug is also Nike Air Max Uptempo 95 Colorways
This is a situation many health policy experts say exposes serious issues with our approach to drug coverage and highlights the importance for a better approach. The CF community and Tim Vallillee are on the edge of a proverbial seat to see what will happen.
with. One of only about 100 Canadians with a rare mutation of cystic fibrosis, he is part of an elite group of eight Nova Scotians over the age of six that should respond well to the drug. In clinical trials, patients on the drug had greater lung function, fewer hospitalizations and increased body weight compared to those who were taking a placebo.
of cystic fibrosis (CF). But the price tag is the issue.
According to Cystic Fibrosis Canada, dozens of Canadians are waiting patiently for access to the drug. Spokesman Ken Chan has called on provincial governments and drug companies to strike a balance and come up with a longterm solution to the drug price problem for rare diseases.
In December, Nova Scotia's new health minister, Leo Glavine who represents the area where Vallillee lives said the province would look at covering the cost, but more recently he put the brakes on.
This funding issue won't go away until Kalydeco becomes available to the Canadians who should be taking it. We sense that once Glavine knows the progress of negotiations, he might decide to go it alone if the pan Canadian group can't strike a deal soon because he personally wants a strategy to help patients in need.
Cystic Fibrosis Canada actually calls the drug a breakthrough in terms of improved lung function. The organization says it is the first drug to address the underlying cause Uptempo Nike Men
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